Families who have children with athetoid cerebral palsy are faced with an uncertain future. The financial demands of caring for a child with a disability far outweigh any normal family’s capacity to deliver.
A child with athetoid cerebral palsy will require services and equipment to support them to maintain a ‘normal’ operating life for as long as they live. The costs associated with providing the equipment and services are expensive and relentless.
The government provides around $100 a fortnight to any carer (Mum or dad) to look after their child and unfortunately this doesn’t go very far.
During the early years of development our bodies do a lot of growing… children outgrow shirts, trousers, school uniforms, etc., and they also outgrow wheelchairs, walking frames and lifting equipment (as they get heavier). When a child is small the parents are often able to carry the child or assist them however as they grow older (and larger) they require specialised equipment to get them in/out of bed, in/out of a bath, on/off the toilet, as no longer are the ageing parents able to tolerate the strain on their bodies.
The following diagram demonstrates the areas in a childs life for which require specialised services or equipment (Click the image to zoom in):
If you would like more detailed information on the costs associated with caring for a child with Athetoid Cerebral Palsy, as a specific example, we have outlined Daniel’s specific requirements HERE.